My brother, a TV news director in Knoxville, TN, passed along the website of an organization called Saving Little Hearts, based in Knoxville.
From their mission statement: "Saving Little Hearts is dedicated to helping children with congenital heart defects and their families by providing financial and emotional assistance and educational information. Saving Little Hearts also strives to provide enriching, educational and fun experiences for these children which will help them build friendships and confidence."
Interesting thing I learned on their homepage (I'm learning all sorts of things these days): "More children are affected by congenital heart defects than any other birth defect."
If anyone knows of any other worthy organizations/websites dedicated to children with heart defects, family support, etc., let me know and I will add them to the list I'll be building.
1 comment:
Hi
I left a note on your previous blog to say good luck and that we know exactly where you are coming from.
Unfortunately I too can reel off too many facts and know way to much about the heart given our son (now 3) had open heart surgery reconstructing his mitral valve, aortic valve and aortic arch, closing a Ventricular Septal Defect (VSD) at 5 days of age. We too were not aware this was coming until day 2.
For those interested:
- 1 in 100 babies are born with a heart defect.
- Nearly twice as many children die from congenital heart disease in Australia each year than all childhood cancers combined.
- Heart disease is the leading cause of child deaths in Australia accounting for more than 30%.
I too have only recently began to transpose some of our journal to a blog of our journey to date and there are some useful Australian Heartkid Reference websites in the sidebar (although I'm a South Aussie, Victorian Heartkids website is fabulous).
Once again all the best for Logan and the family.
If interested, drop in to www.beatinghearts4kids.blogspot.com and drop an email at any time if you like.
Post a Comment